ER Experience

I went to the ER a couple nights ago. I’m not sure that I am entirely needed to go at all in hindsight. You have to understand I was diagnosed with MS over the phone without consulting with my neurologist. My neurologist doesn’t practice anymore so I’m waiting for a new one. My neurologist was waiting for me to have a relapse to put me on medications.

This has given anxiety about the impending doom of this relapse. Because of the relapse itself. This doesn’t sound at all fun. But also because not all of me has accepted that I will recognize a relapse as a relapse, with all my other neurological and chronic pain issues. Or if one will ever even come since my MS was diagnosed based on the lesions and lumbar puncture and not so much on symptom presentation. And that is wishful thinking, but still, it is what it is right now.

So the Relapse

So I have symptoms that do not fit the criteria that I would think of existing conditions. That expressed themselves within the last three days. I think maybe this is one and I should go to the ER. The ER being where to go between neurologists to get steroids.

Part of the issue was leg weakness that freaked me out. So much so I went for a long walk today (well long for me, which is not even that long at all). Anyway, my drop foot kicked in but the leg weakness didn’t. So it is There. Then it is Not. And it did last three or so days. So did vertigo. And another weird symptom I had a hell of time even explaining.

I was in the ER 12 hours counting wait time. So not a choice I ever relish making again.

They didn’t give me steroids, instead they bumped up my neurologist appointment for me because my symptoms are getting worse. Thankfully. Hopefully I will get in soon and assessed for what I need.

Still?

Was it one? I haven’t had much sleep lately. I have had immense fatigue. I haven’t been active. So some muscle fatigue plus lack of activity and I think leg weakness might hit from Fibromyalgia. I am just not sure.

So then I think they are so busy in the ER and so many people to go through, thus the wait time. That I wasted their time. Because I can’t seem to tell especially with this anxiety what a Relapse would entail. Other than more obvious ones.

So far I am fine without medication. And I recognize what a Pseudo Flare IS. But I just have not had a relapse as far as I can tell, if that was not in fact one. Nor do I want to know one. Either way I should understand not to go to the ER unless I go blind in one eye or a lot of numbness for more than two days. Some of the symptoms maybe MS, and I believe they are, but they maybe not indicate a relapse and I just do not know.

Not knowing is difficult indeed. Because I know fibromyalgia. I know migraines. I know even vertigo itself. I know fatigue and such is MS but I do not know much about this in my Body yet. How it presents for me right now outside of every other symptom I have.

My initial thoughts on MS diagnosis