Does your skin burn like it has a sunburn on it? Does contact with your clothes aggravate you beyond belief? Does even the lightest touch make you want to jump out of your skin? That sounds like Allodynia. Allodynia is a type of pain associated with Fibromyalgia and Multiple Sclerosis. I knew it was associated... Continue Reading →
Exercise. There. I said it. Sounds a little bit like a curse word. Mostly because it is necessary in some ways and it's painful. Seemly with no real output. Or at least, not in the way we wish there was an output. Like Boom, cured. More like Boom, sprained my body. Instead, its arduous, difficult... Continue Reading →
I bought myself a nice car. Used. But shiny and new to me. A 2013 Kia Soul. But with the drop foot on my dominate let I soon realized I needed to fit it with a Left Foot Accelerator. You can get hand accelerators as well, but my right hand is also losing dexterity- so... Continue Reading →
Oh, I know, Pacing, we all have heard about it and know about it but I have to talk about it because it is a pretty big damn deal. It is one of those fundamental skills that we Know and also Ignore. It’s a thing we do and then regret that and then do it... Continue Reading →
Productivity is one of those words I cringe when I hear. It has negative associations for me now with chronic pain and chronic illnesses. I was pondering my old relationship with productivity when I worked. It is not a pleasant one. And this is that tale: Let's talk work and career I had a full-time... Continue Reading →
Chronically Nikki 