I got my lumbar puncture results back and a call from my neurologist. I do in fact have Multiple Sclerosis (MS). This has been after years of abnormal MRIs with lesions but my neurologist insisting I didn't present with MS. Because I have fibromyalgia and chronic migraine- so a lot of overlap in symptoms. And... Continue Reading →
It seems like stress is a constant factor in our existence that we cannot banish. It is embedded within the existence of chronic illness and pain. And as a consequence of chronic pain and illness on our lives as well. And those consequences in our lives we have to live with; dealing with doctors, employers,... Continue Reading →
The practice of self-compassion can help us avoid the trappings of self-limiting or destructive thought processes, like the critical inner voice, that often diminish our motivation or initiative. Neff’s findings show that self-compassion can reduce anxiety and actually help us make real changes in our lives. Neff’s study found “Using a correlational design, the study found that self-compassion had a significant... Continue Reading →
Ennui A feeling of listlessness and dissatisfaction arising from a lack of occupation or excitement. (Google) There is this state that comes after a setback when you have yet to quite adjust to things - this stagnant, listless, lethargic state I get in. One of ennui. I find myself here. Trying to move forward but... Continue Reading →
There is a huge problem with diagnosis with comorbid conditions. As in all this overlap of symptoms. I really need to find answers but answers are incredibly hard to find now. I wonder if it isn't anything New at all bur rather something that has been ignored for too long. I have: Chronic migraine Chronic... Continue Reading →
I bought myself a nice car. Used. But shiny and new to me. A 2013 Kia Soul. But with the drop foot on my dominate let I soon realized I needed to fit it with a Left Foot Accelerator. You can get hand accelerators as well, but my right hand is also losing dexterity- so... Continue Reading →
Me: I’m going to clean the house in One day! Body: Hell no, you’re not. Me: Yep, getting started now. *Does one thing* Body: Here is some fatigue and pain for you. Price of that one thing. You're welcome. Me: Damn it! Fact is, everything has a price and cost And you have a couple... Continue Reading →
Being productive on disability takes on different meaning than when I was working. I have to account for pain, fatigue, vertigo, muscle weakness and my mobility issues. In order words, productivity takes planning. I plan what I need to do and I figure out how to get it done. And I do not feel like... Continue Reading →
Chinese meditation balls are called Baoding balls or sometimes Zen mediation balls. How to use: They are two balls you can roll around in your palm in a circular motion. Some of them, like mine, have a chime in them. As a beginner, as you rotate them the balls maintain contact the whole time. As... Continue Reading →
Productivity is one of those words I cringe when I hear. It has negative associations for me now with chronic pain and chronic illnesses. I was pondering my old relationship with productivity when I worked. It is not a pleasant one. And this is that tale: Let's talk work and career I had a full-time... Continue Reading →
The old Blog I could have completely re-instated my blog my installing the download but, I had been hacked and that was lost. So I start fresh. I so have a lot of posts I had made from a book I am figuring out and I may use some of those from a new point... Continue Reading →
The grief of a body that was never quite leaves us. You think that it will. And it will for a time. But there comes a day when things get worse and it can come back. I sit outside watching the sun rise and listen to the sprinkle of rain hit the ground. It is... Continue Reading →
Chronically Nikki 