My neurologist is pretty good. I have had some crappy ones and some great ones and this one knows his stuff. Migraine Disease We went over my migraines which are responding well to Topamax at the dosage I am on. I am still chronic but not daily and not as intense as they could be.... Continue Reading →
There is a huge problem with diagnosis with comorbid conditions. As in all this overlap of symptoms. I really need to find answers but answers are incredibly hard to find now. I wonder if it isn't anything New at all bur rather something that has been ignored for too long. I have: Chronic migraine Chronic... Continue Reading →
I have always had a little heat intolerance when it came to chronic illnesses. Mostly my migraine disease. Just made it worse. And then I couldn't sleep which made it worse the next day. Anyway, now I definitely have issues with heat. Now with the hot summer I am noticing the heat intolerance is making... Continue Reading →
I bought myself a nice car. Used. But shiny and new to me. A 2013 Kia Soul. But with the drop foot on my dominate let I soon realized I needed to fit it with a Left Foot Accelerator. You can get hand accelerators as well, but my right hand is also losing dexterity- so... Continue Reading →
Since I was young I have had an Invisible Illness(es). This is a distinct experience with distinct problems. I have invisible disabilities: Chronic Migraines Fibromyalgia Chronic vertigo (Rides the line of an invisible disability for sure as I will mention but certainly it can't be Seen) That cause the most problems for me for most... Continue Reading →
Me: I’m going to clean the house in One day! Body: Hell no, you’re not. Me: Yep, getting started now. *Does one thing* Body: Here is some fatigue and pain for you. Price of that one thing. You're welcome. Me: Damn it! Fact is, everything has a price and cost And you have a couple... Continue Reading →
Oh, I know, Pacing, we all have heard about it and know about it but I have to talk about it because it is a pretty big damn deal. It is one of those fundamental skills that we Know and also Ignore. It’s a thing we do and then regret that and then do it... Continue Reading →
Being productive on disability takes on different meaning than when I was working. I have to account for pain, fatigue, vertigo, muscle weakness and my mobility issues. In order words, productivity takes planning. I plan what I need to do and I figure out how to get it done. And I do not feel like... Continue Reading →
Chinese meditation balls are called Baoding balls or sometimes Zen mediation balls. How to use: They are two balls you can roll around in your palm in a circular motion. Some of them, like mine, have a chime in them. As a beginner, as you rotate them the balls maintain contact the whole time. As... Continue Reading →
Productivity is one of those words I cringe when I hear. It has negative associations for me now with chronic pain and chronic illnesses. I was pondering my old relationship with productivity when I worked. It is not a pleasant one. And this is that tale: Let's talk work and career I had a full-time... Continue Reading →
The old Blog I could have completely re-instated my blog my installing the download but, I had been hacked and that was lost. So I start fresh. I so have a lot of posts I had made from a book I am figuring out and I may use some of those from a new point... Continue Reading →
The grief of a body that was never quite leaves us. You think that it will. And it will for a time. But there comes a day when things get worse and it can come back. I sit outside watching the sun rise and listen to the sprinkle of rain hit the ground. It is... Continue Reading →
Chronically Nikki 