I recently went on the MS medication Mavenclad and doing quite well on it actually. In early April I will be on my next dosage and then nothing for the rest of the year. It does mean I am immune compromised though and have to watch for that. And I have not been even pacing as I should because I am packing and spring cleaning as I pack. It has been hectic. I seem to be catching a cold.
Pacing with multiple chronic conditions, even when on disability, is by no means an easy feat, I find. Pacing pain. Pacing fatigue. Resting regularly. Knowing when your body needs to rest. Always moderating activity. Including cognitive activities.
Then comes along activity that cannot be paced and has a timeline. And off to the races we go. Pushing ourselves to the limit. And beyond.
I got tired. And then more tired. And more tired. And now I feel sick. Just a little cold but I don’t want to push it when I do not have to.
I am trying to rest between activity there is just a lot of activity. Too many things to do. I am trying to hydrate. But I am beat today. And I have to get up and about tomorrow for bloodwork. And I am Beat.
So much for pacing. When I know better for sure.
So tomorrow after my bloodwork is a chill day of basically rest. The essentials that I do and rest. Just to catch up on some rest. Because not every single thing has to be done immediately and at once. I can slow it down a notch.
Moving is always stressful. And it benefits me to relax a bit. I don’t mind at all that I am spring cleaning and de-cluttering as I go along- just that perhaps I am doing too much in the day. But the process itself is satisfying. I have time to do it. I just get caught up and exceed those limitations. Energy is in short supply these days. Weeding out junk is nice no matter what. And I am glad I won’t be bringing things with me I no longer need. I am not a minimalist, by any means. But I like to not hold onto things I don’t need either.
Chronically Nikki 
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